10 Tips to Having an Illness Support Group that Isn’t Depressing
May 13th, 2008 by Lisa Copen
If you live with chronic pain or an illness, odds are that you have attended a support group at least once since you were diagnosed. Did it feel something like this?
You felt awful the entire day but you decided to get in the car and go to the support group anyway. You thought it would be good for you. It took forever to find the building at the hospital and then you ended up parking what seemed like a mile from the suite number. You found a chair that smelled like old sweat and smoke and hoped somehow you would find some encouragement. But an hour later you’re ready to make dash for the door. Everyone seems to be so depressed! And too many people want to either sell you a juicer that is sure to cure your problems, or tell you about every surgery they’ve had since 1977.
Aren’t support groups supposed to be a valuable coping tool?
The answer is yes! Studies completed by Dr. David Spiegel have concluded that support groups do in fact improve the quality of life of those who are willing to attend. Recent studies (CANCER, Sept 2007) have show that support groups do not actually increase the lifespan of one who lives with cancer. But regardless, by having one’s feelings about her illness validated, her skills of coping with chronic illness are definitely more improved.
Whether you are looking for leadership program ideas for your small group, or you’re just thinking about attending one, you may have cause for concern about how fast a group can go from being a friendly, honest place to a time of complaints and even bickering. Would you like some fresh icebreaker games for small groups to perk people up?
Here are 10 tips to help you make your chronic illness support group include some laughter as well as just the discussion of challenges. And these ideas will work for any groups, from a Dementia support groups in Dallas to an Ebsteins Anomaly support group. And these ideas are perfect to have when you are creating a proposal for starting up a support group.
1. Cut out some smiley faces and sad faces and glue them back-to-back to a stick or plastic knife. As you go around the circle sharing have each person make sure they are able to hold up both sides of the faces when they are talking about their illness. For example, Mary could hold up the sad face and say, “Preparing for a joint replacement and all the therapy involved afterwards is a bit scary.” (Then flip it over) “But the upside is my family and friends are already volunteering to come over and help me out around the house.”
2. Rethink your concept of what counts as indoor games for small groups. For example, have everyone bring things for a JOY box and then have everyone choose something to take with them out of it at each meeting. It could be a rubber frog, a favorite poem, a note someone sent, an encouraging book, a silly or sentimental DVD. Have everyone return them by the next meeting to share again.
3. Here’s a unique icebreaker for small groups. Make a silly theme song that you use to start the meeting. You can pick a song and make up new lyrics too. Check out comedian Anita Renfroe for some good ideas about how to make a song your own at her web site.
4. Find some goofy props to bring to your meeting. Don’t make anyone feel they must use or wear them. (Forcing someone to wear bug antennas may scare them away for good.) But make sure they are available to encourage light-hearted moments before discussing the depressing reasons you are there. You can find hundreds of items for a reasonable price at Oriental Trading Supply.
5. Don’t let the group turn into a venting session for one member who insists dominating the conversation. There is often someone who insists on sharing details about diagnosis, treatments, complaints, family troubles etc. If you have someone who fits this description, implement a policy to set a timer. Make it fun by telling people they have 60 seconds to get anything off their chest and they can talk as fast as they want. Does someone want to share about a new alternative treatment? Give him/her a limited time like 1 -2 minutes and then invite people to ask for more details after the meeting.
6. Have everyone bring something to put into a basket of encouragement for someone else. It may be someone who is having surgery from your group or a friend of someone in the group who has just been diagnosed. Brainstorm together about what items people would like, and be sure to remember sometimes the personal notes mean the most. If it’s appropriate consider including family members.
7. Have a fun night out. You can act your age and go to a nice sit-down restaurant or head over to Chuck E. Cheese for some pin ball. It can definitely be a successful icebreaker for small groups because people who haven’t opened up much in the group may feel relieved to have this environment to get to know others.
8. Have items on hand that will encourage people to thrive despite their illness. For example, National Invisible Chronic Illness Awareness week has fun things like bumper stickers, pins, mugs and stickers that have themes like “My illness is invisible but my hope shines through.”
9. Invite guest speakers who you trust will speak positively. Inform your speakers that they can “tell it like it is” but that you always want people to leave the meeting feeling energized; not depressed. Let them know they can use props, tell a joke, or do whatever it takes to keep people paying attention.
10. Focus on things that your group can actually do that will change things, since they may feel so unable to control their illness. If you can’t physically participate in the local walk for charity, could you work at a table handing out snacks or doing registration? Find events your group can participate in to feel like they are doing more than just complaining about their predicament. Take advantage of the energy that teens with chronic illness often have to motivate support groups to get involved in outside projects.
Illness can be one of the most isolating experiences people have, and support groups provide a sense of belonging in the midst of this. The levels of relationship that form in the group, however, are significantly influenced by how uplifting the leader makes the group environment. None of us want to leave a meeting feeling worse than when we came, but rather refreshed and motivated to live the best life possible. With just a few changes, your support group can go from being a simple meeting, to becoming a lifeline for those involved.
